There are significant differences between independence and directed living. Between expression and imitation. Between critical thinking and programmed answers. And in each case, when the latter is executed seamlessly, one can hardly differentiate between the two. A tiny shift, though, disrupts the patterns and can reveal significant deficits.
It took me several months to finally recognize these deficits, and then several more months to approach them with strategies for development. In the meantime, I have hardly been able to recognize change. Indeed, spending 10-12 hours a day observing and working with Mohammed, these gradual and minute progresses are seemingly invisible. Having them drawn out, day to day, over the course of a year surely obscures one's ability to identify change. It is as the sun in the sky. Between the sunrise and the sunset, one is hardly conscious of the path traversed throughout the day.
Before heading home for Christmas break, I was determined to record a conversation with Mohammed. We sat down, and ended up with something like a 5-minute exchange. I then put that video on my computer, and remembered to refer back to a video assessment from more than a year ago.
October 18, 2010. I hate this video. I only show the first minute to others, as beyond that, my visible frustration and impatience is embarrassing. I keep the video, though, to remind me of not only the many things I need to work on as a teacher, but also the moments with my student that have been lost along the way.
To contrast, I will simply provide a transcript of each conversation (as verbatim as possible considering the translation), to illustrate the disparity between then and now.
Oct. 18, 2010- Brent-"Hello. How are you?"
Mohammed- *hands rest on table momentarily* "Hello. How am I."
Brent- *disappointment and exasperation plastered across face* "What did you do at home, 2 days ago, on (one day) Friday?"
Mohammed- *a full 13 seconds pass before he starts signing* "Do at home. Yesterday. Finished. Day before. Finished." *starts to sign "Friday", but then goes back to replicate the preceding sign "one day" to fully mirror me, struggling with this* "Day. Day. Day. Day........Friday."
That is it. That was a conversation, 14 months ago. A spontaneous, unscripted conversation looked like this. Everything I said was repeated back to me. Communication, at an expressive level, was not remotely understood.
Dec. 22, 2011- Brent- "Now, you and me are going to have a conversation. What do you want to talk about?"
Mohammed- "The topic. I don't know."
Brent- "You choose what you want to talk about. The topic."
Mohammed- "The topic... (pause) ...Home."
Brent- "Ok. The topic is home. Mohammed, what do you do at home?"
Mohammed- "At home, (starts to sign "help" (hinting at the later answer seen below) then..) I listen to music."
Brent- "At home, who do you listen to music with?"
Mohammed- "Mama."
Brent-"Cool....."
The conversation continues, talking about what else going on at the house. Mohammed says he will help mother clean. I ask if he does anything more, and he tells me he will help mama with the laundry. When I ask why we do laundry, he is confused. Sarcastically, I say, "Oh, my shirt and pants smell, and are dirty, and this is ok?" Mohammed says, "Dirty finished. Clean." He gets the idea.
I go on. ".....after vacation is finished, then what?"
Mohammed- "I return."
Brent- *prodding* "You return? What?"
Mohammed- "Monday. After a week. On Monday I return." (spot on, actually)
Brent- "Ahh. After a week, on Monday, you return....return WHERE?"
Mohammed- "I don't know. I am doing..."
Brent- "Returning. Returning. Returning. WHERE?"
Mohammed- *pause* "School."
Forget Helen Keller at the well, fingerspelling water. The ever idyllic story. That account, while touching and memorable, is defunct in my educational realm. Not a child with acquired deafblindness at 1 and a half years old, utilizing the communication skills developed during early infancy (the mental plasticity there is paramount), later learning words around age 7. No. Mohammed was born deafblind. And in that October video, he was 18, practically operating as a robot. 14 months later. He talks. He does not echo. He does not issue programmed responses. He talks.
Helen needed a door to be opened in her mind. It was a miracle. Mohammed needed the walls to be broken down. The barricades, that imprisoned his mind, had to be destroyed. It is a miracle. There are none like him in Jordan.
For this reason, there are rumors of a young American that occasionally comes out at night. With the moonlight shining off his bald head, he blasts hip-hop music and dances in circles around the school courtyard, pounding his chest. He mumbles that this is what he was meant to do, but he does not Tebow. He thanks God that somehow, his path collided with this opportunity. That is the rumor, at least.
I'm not Anne Sullivan, and I'm not a miracle worker. But this has been a miracle. This is what I'm meant to do. Lord, let my work be a living act of praise, and the miracles are yours. Peace.
It took me several months to finally recognize these deficits, and then several more months to approach them with strategies for development. In the meantime, I have hardly been able to recognize change. Indeed, spending 10-12 hours a day observing and working with Mohammed, these gradual and minute progresses are seemingly invisible. Having them drawn out, day to day, over the course of a year surely obscures one's ability to identify change. It is as the sun in the sky. Between the sunrise and the sunset, one is hardly conscious of the path traversed throughout the day.
Before heading home for Christmas break, I was determined to record a conversation with Mohammed. We sat down, and ended up with something like a 5-minute exchange. I then put that video on my computer, and remembered to refer back to a video assessment from more than a year ago.
October 18, 2010. I hate this video. I only show the first minute to others, as beyond that, my visible frustration and impatience is embarrassing. I keep the video, though, to remind me of not only the many things I need to work on as a teacher, but also the moments with my student that have been lost along the way.
To contrast, I will simply provide a transcript of each conversation (as verbatim as possible considering the translation), to illustrate the disparity between then and now.
Oct. 18, 2010- Brent-"Hello. How are you?"
Mohammed- *hands rest on table momentarily* "Hello. How am I."
Brent- *disappointment and exasperation plastered across face* "What did you do at home, 2 days ago, on (one day) Friday?"
Mohammed- *a full 13 seconds pass before he starts signing* "Do at home. Yesterday. Finished. Day before. Finished." *starts to sign "Friday", but then goes back to replicate the preceding sign "one day" to fully mirror me, struggling with this* "Day. Day. Day. Day........Friday."
That is it. That was a conversation, 14 months ago. A spontaneous, unscripted conversation looked like this. Everything I said was repeated back to me. Communication, at an expressive level, was not remotely understood.
Dec. 22, 2011- Brent- "Now, you and me are going to have a conversation. What do you want to talk about?"
Mohammed- "The topic. I don't know."
Brent- "You choose what you want to talk about. The topic."
Mohammed- "The topic... (pause) ...Home."
Brent- "Ok. The topic is home. Mohammed, what do you do at home?"
Mohammed- "At home, (starts to sign "help" (hinting at the later answer seen below) then..) I listen to music."
Brent- "At home, who do you listen to music with?"
Mohammed- "Mama."
Brent-"Cool....."
The conversation continues, talking about what else going on at the house. Mohammed says he will help mother clean. I ask if he does anything more, and he tells me he will help mama with the laundry. When I ask why we do laundry, he is confused. Sarcastically, I say, "Oh, my shirt and pants smell, and are dirty, and this is ok?" Mohammed says, "Dirty finished. Clean." He gets the idea.
I go on. ".....after vacation is finished, then what?"
Mohammed- "I return."
Brent- *prodding* "You return? What?"
Mohammed- "Monday. After a week. On Monday I return." (spot on, actually)
Brent- "Ahh. After a week, on Monday, you return....return WHERE?"
Mohammed- "I don't know. I am doing..."
Brent- "Returning. Returning. Returning. WHERE?"
Mohammed- *pause* "School."
Forget Helen Keller at the well, fingerspelling water. The ever idyllic story. That account, while touching and memorable, is defunct in my educational realm. Not a child with acquired deafblindness at 1 and a half years old, utilizing the communication skills developed during early infancy (the mental plasticity there is paramount), later learning words around age 7. No. Mohammed was born deafblind. And in that October video, he was 18, practically operating as a robot. 14 months later. He talks. He does not echo. He does not issue programmed responses. He talks.
Helen needed a door to be opened in her mind. It was a miracle. Mohammed needed the walls to be broken down. The barricades, that imprisoned his mind, had to be destroyed. It is a miracle. There are none like him in Jordan.
For this reason, there are rumors of a young American that occasionally comes out at night. With the moonlight shining off his bald head, he blasts hip-hop music and dances in circles around the school courtyard, pounding his chest. He mumbles that this is what he was meant to do, but he does not Tebow. He thanks God that somehow, his path collided with this opportunity. That is the rumor, at least.
I'm not Anne Sullivan, and I'm not a miracle worker. But this has been a miracle. This is what I'm meant to do. Lord, let my work be a living act of praise, and the miracles are yours. Peace.